Fundraiser For Boy With Rare Disorder - Northern Michigan's News Leader

Fundraiser For Boy With Rare Disorder

Posted: Updated:

Business and community members come together this weekend to support a little boy with a rare disorder.

Zander Tewksburty is one of two children with Pitts-Hopkins syndrome in Michigan.

There are only 75 cases in the United States.  

The fundraiser will be held to raise awareness the Petoskey High School in Emmet County.

Doctors are unsure whether Zander will ever be able to walk on his own or speak.

His family is trying to raise money to go see a doctor in California, which their insurance won't cover.

Money that is raised will also go towards outfitting their home with the right things to fit Zander's needs.

Pitt-Hopkins syndrome has many moderate and severe effects such as breathing problems and seizures.